Lily has been on biofilm since the middle of January. Biofilm is a protocol that was designed by Anju Usman, M.D. to help kids on the spectrum with continuing intestinal issues that didn't seem to be resolved by antibiotics, antiviral therapies, or anti fungal treatment alone. They prescribed biofilm to heal Lily's stomach dysbiosis. It was a difficult regimen to maintain to say the least!!!
Okay...I'm not a doctor so bear with my descriptions! I'm just going to describe it as I understand it. Every morning, we had to give her 3 enzymes (CDX, PRX and EDTA) 30 minutes before she ate anything. This allowed the enzymes to break down the film that was protecting the bacteria/fungus that was causing the dysbiosis. For those of you with kids on the spectrum, you know this can prove to be difficult with her OCD issues. Hell...I even have problems waiting 30 minutes to eat if I"m hungry. After waiting 30 minutes, we then gave her the anti fungal/antiviral supplements of diflucan, monolaurin, olive leaf extract in addition to supernuthera p54, Mitorescue and colostrum gold.
According to Lily's most recent stool tests done in early May, after a year and a half of dysbiosis, Lily's stomach issues have completely healed. We aren't saying that they are gone forever. We still have to maintain the gfcfsfyf diet and watch her sugar intake. However, the biofilm protocol seemed to heal her dysbiosis.
At my last appointment with her Defeat Autism Now! , her doc told us the next comorbid conidtions we needed to work on are viral and mitochondrial issues. According to blood tests, Lily has very high levels of the Epstein Barr virus in her system. We found out that this can be present without having any viral symptoms. Her levels are half of what they were 8 months ago when we had her blood tested though! Her doctor thinks this is due to the fact that we have been strenghtening her immune system over the last 20 months with her currently protocol. The improvement can also be attributed to the natural antiviral treatment of olive leaf extract.
Although her EBV levels have been cut in half, they are still considered extremely high. She said that it was time to pull out the big guns ....valtrex. I have a phone consultation with a nurse this afternoon to discuss the details of that protocol. I do know that we have to stop biofilm while she is on valtrex for the 3 month trial period. I'm nervous about stopping biofilm because it healed her gut issues. Her doctor has said that when they take kids off of biofilm, the dysbiosis will often return and the child has to restart biofilm again. I'm also nervous about starting valtrex b/c I've read about the regression that can happen in the first month of starting it. At the same time, I've also read about the amazing progress some children (like Stan Kurtz's son) have seen with valtrex so I have mixed emotions. One thing you can say about the biomedical journey in autism...it's a roller coaster ride and you never know when the next turn or loop will throw you into a tailspin!\
For the mitochondrial issues, she is taking a compound call MitoRescue designed by Dr. Usman. Mitochondrial dysfunction has been linked with apraxia of speech....which is one of Lily's major obstacles. We are currently in the process of increasing her dosage slowly b/c she seems to be senstiive to some of the ingredients. However, we have noticed that after starting it several weeks ago, her speech has increased a little.
Supplements Lily is currently on:
- Supernuthera P54 - multivitamin
- Colostrum Gold - for buiding the immune system
- diflucan (medication) - treats yeast overgrowth
- Klaire detox - probiotic
- VSL #3 - probiotic
- Glutathione cream - removing toxins
- monolaurin - treats fungal and viral issues
- olive leaf extract (ole) - treats viral issues
- Magnesium citrate - prevents constipation
- MB12 injections every 3 days - improves the body's methylation system
Mito Rescue - a compound created by Dr. Usman to help with mitochondrial issues associated with apraxia.
I'll be posted more soon about Lily's new protocol I'll learn about today....joy:-)
How is she doing with valtrex?
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